About LymeNotes
I was losing my physical abilities and my mind. I'd been an inspector, I found defects in things... So, I started a journal documenting five things every day: Activity, Barometric Pressure, Diet, Mood, and Symptoms. Patterns began to emerge. I submitted a summary of my observations to my newly hired LLMD. That journal saved my sanity and helped her to save my life.
Why Facebook?
I always said "Some good must come of this."​
Using a Facebook Page allowed me to make, keep, and share a record of my progress―from treatment, through recovery, to remission, and on through to our current treatment of co-infections. At the time, there was so little information available to the public between 2012 and 2015―when I wrote my first post. I felt it was important to share my story. I had to go public. My thinking was that at least one other person could find comfort and hope knowing they were not the only one suffering under layers of seemingly unrelated comorbid symptoms.
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Friends shared the LymeNotes Page with their family-n-friends. Fellow travelers in the tick-borne disease support groups shared my posts. I began receiving communications from other tick-borne disease sufferers in my state, across the country, and around the world.
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I haven't cured anyone of anything. But I've done my best to be a kind and compassionate communicator who's helped others to help themselves along this rough and rugged road to well-being. In short, Facebook afforded me the most efficient path of two-way communication between myself and the outside world.
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You will find a link to the LymeNotes Journal Page by clicking on the Facebook icon in the "Keep In Touch..." section at the bottom of the page.
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